The Canadian Donation and Transplantation Research Program in cooperation with the Organ Donation and Transplantation Collaborative and the Canadian Society of Transplantation, is happy to announce the third edition of the Patient, Family and Donor Research Forum dedicated to donation and transplantation research partners across Canada was held on June 22-23, 2022.
The Forum’s objectives were:
To advance collaboration between investigators and patient, family, donor (PFD) partners in donation and transplantation research;
To educate investigators and PFD partners on emerging best practices regarding the inclusion of PFDs in research and knowledge translation activities;
To promote researchers to present their work that has evolved with a PFD perspective.
During the Patients, Families & Donors in Knowledge Translation portion of the forum, Can-SOLVE CKD Project Manager Alicia Murdoch and Patient Partnerships and Training Manager Linnea Franson presented “Embedding patient engagement: the Can-SOLVE CKD experience.”
Senior leaders from the four Atlantic provinces are jointly announcing the Atlantic Clinical Trials Network (ACTN) later today at the BIO International Convention in San Diego, the world’s largest event focused on biotechnology.
The network leverages regional collaboration, provincial leadership, entrepreneurial capacity, and world-class research to revolutionize access to care for patients. ACTN is driven by agility and the ability to get the right partners to the table at the right time, creating a single point of entry for researchers, partners, and patients.
Initiated by Nova Scotia Health and co-led with IWK Health, Eastern Health, Vitalité Health Network, Horizon Health Network, and Health PEI, ACTN is poised to boost research and innovation, introduce new healthcare opportunities, and position the region as a world-leader in clinical trials.
Happy International Clinical Trials Day! Raising clinical trial awareness and honouring clinical research professionals across the globe. Today, we recognize the work of our network members in advancing medical knowledge through research.
Listen to all episodes of the CNTN Spotlight podcast below. Join host Alicia Murdoch as she has engaging conversations with both clinicians and patient partners about various topics of importance in clinical research.
This episode features Dr. Bhanu Prasad, Nephrologist practicing in Regina, Saskatchewan. In this episode, Dr. Prasad discusses the recent publication in CJASN “Kidney Failure Risk Equation and Cost of Care in Patients with Chronic Kidney Disease” and his research on loin pain hematuria syndrome (LPHS). Dr. Prasad is also a member of the CNTN Communication and Engagement Committee.
Episode 4 – Interview with patient partner Mary Beaucage
Episode 4 features an interview with Mary Beaucage, a patient partner from Nipissing First Nation, Ontario who sits on the CNTN Communications and Engagement Committee. She is a kidney recipient and involved in several studies and committee’s within Can-SOLVE CKD including the Patient Governance Circle and Indigenous Peoples’ Engagement and Research Council and will be discussing her experience.
Listen now:
Episode 3 – Interview with Dr. David Collister
This episode features Dr. David Collister, Nephrologist from University of Alberta. In this episode, Dr. Collister discusses his research program that focuses on symptom management and his experience conducting patient-oriented research. Dr. Collister is also a member of the CNTN Scientific Operations Committee and the Executive Committee.
Listen now:
Episode 2 – Interview with Dr. Stephanie Thompson
This episode features Dr. Stephanie Thompson, Nephrologist from Edmonton. In this episode Dr. Stephanie Thompson from the University of Alberta talks about the challenges and lessons learned from her recent exercise trial.
Listen now:
Episode 1 – Interview with patient partner Dwight Sparkes
The first episode features an interview with Dwight Sparkes, a patient partner from St. John’s Newfoundland who is the patient co-lead on the CNTN Capacity Building committee. He is involved in several studies and working groups within Can-SOLVE CKD and will be discussing his experience over the past 4 years.
The Gardener’s Grove Conference 2023 will serve to increase knowledge and awareness about the conduct of pragmatic cluster randomized registry trials embedded into routine hemodialysis care and provide an opportunity to discuss and build support for new trial ideas.
Send us your simple, sustainable, and scalable solution to better the lives or health care of patients on hemodialysis!
We are looking to support the development of interventions in hemodialysis centres that can:
be scaled into large multi-centre randomized controlled trials
be integrated into routine health care delivery with minimal disruption
collect trial data from existing health care databases
be appropriate for an alternative method of patient consent
Are you a patient, caregiver, and/or family member interested in being involved in a trial idea?Send us your proposal!
To submit your proposal or if you have any questions please go to gardenersgrove.ca
Nominated Principal Investigators receiving CIHR grant funds for clinical trial research on or after January 1, 2022 must comply with the following practices to remain eligible for new CIHR funding:
Clinical trials must be registered in a publicly available, free-to-access, searchable clinical trial registry complying with the WHO’s international agreed standards before the researcher meets with the first study participant.
New Public disclosure of results must be done within a mandated time frame:
Publications describing clinical trial results must be open access from the date of publication.
Summary results must be publicly available within 12 months from the last visit of the last participant (for collection of data on the primary outcome).
New All study publications must include the registration number/Trial ID (to be specified in the article summary/abstract).
Open call for submissions! The Canadian Nephrology Trials Network is planning our next virtual research symposium. Our network includes nephrologists, researchers and patient partners. This event is free and open to all. A great opportunity to present your work!
In collaboration with the University of South Australia, Drs. Bohm, MacRae, Thompson and Zimmerman and patient partner Nancy Verdin are conducting an international survey exploring exercise and physical activity practices and perceptions among peritoneal dialysis (PD) clinicians. The results will directly inform the development of exercise guidelines for people receiving PD.
The survey has been approved by the University of South Australia research ethics board, as it’s being conducted in collaboration with the Global Renal Exercise Network.
The survey has 13 questions and takes approximately 8 minutes to complete. Survey link HERE
A poster showcasing CNTN was available for view and to download at the recent Can-SOLVE CKD Network Annual Meeting September 9 and 10. The poster highlighted a timeline from inception to now, as well as highlighting our network goals, vision and what we offer. PDF version available here: CNTN Infographic PDF
