Nominated Principal Investigators receiving CIHR grant funds for clinical trial research on or after January 1, 2022 must comply with the following practices to remain eligible for new CIHR funding:
Clinical trials must be registered in a publicly available, free-to-access, searchable clinical trial registry complying with the WHO’s international agreed standards before the researcher meets with the first study participant.
New Public disclosure of results must be done within a mandated time frame:
Publications describing clinical trial results must be open access from the date of publication.
Summary results must be publicly available within 12 months from the last visit of the last participant (for collection of data on the primary outcome).
New All study publications must include the registration number/Trial ID (to be specified in the article summary/abstract).
Open call for submissions! The Canadian Nephrology Trials Network is planning our next virtual research symposium. Our network includes nephrologists, researchers and patient partners. This event is free and open to all. A great opportunity to present your work!
In collaboration with the University of South Australia, Drs. Bohm, MacRae, Thompson and Zimmerman and patient partner Nancy Verdin are conducting an international survey exploring exercise and physical activity practices and perceptions among peritoneal dialysis (PD) clinicians. The results will directly inform the development of exercise guidelines for people receiving PD.
The survey has been approved by the University of South Australia research ethics board, as it’s being conducted in collaboration with the Global Renal Exercise Network.
The survey has 13 questions and takes approximately 8 minutes to complete. Survey link HERE
A poster showcasing CNTN was available for view and to download at the recent Can-SOLVE CKD Network Annual Meeting September 9 and 10. The poster highlighted a timeline from inception to now, as well as highlighting our network goals, vision and what we offer. PDF version available here: CNTN Infographic PDF
In the most recent issue of the Canadian Medical Association Journal, Drs. Srinivas Murthy, Robert A. Fowler and Andreas Laupacis wrote an editorial about how the speed with which the UK executed the nation-wide priority-driven RECOVERY trial is not currently possible in Canada.
From the editorial: “Those who manage and fund Canada’s health care systems need to view high-priority trials as an integral part of clinical care and to provide adequate and stable infrastructure funding, thus avoiding the current time-consuming and expensive process of developing separate data-sharing agreements and contracts with many hospitals and organizations. ”
The comic was created by people with lived experience of suicide at the REFLECT research forum which brought together patients and caregivers as well as suicide prevention researchers, trainees and policy-makers.
The top 10 recommendations are:
Use common and clear language
Allow for customization to patient partner’s needs. Be flexible.
Be authentic in the approach to patient-oriented research. Avoid tokenism.
Define roles. Invite and acknowledge everyone’s contributions.
Balance power dynamics.
Invite patient partners to do more than what they are recruited for.
Compensate fairly and as a matter of course. Reimburse expenses.
Build relationships through honesty and trust.
Ensure governance through integrity and accountability.
Establish and encourage continuous communication and feedback.