Congratulations to CIHR Fall 2021 Project Grant recipients

Congratulations to CNTN members Drs. David Collister and Karthik Tennankore who were part of a team that was awarded a CIHR Fall 2021 Project Grant

Project Title: Reducing Dietary Acid with fruit and vegetables versus oral alkali in people with Chronic Kidney Disease (ReDACKD) feasibility trial

Principal investigator(s): Dylan MacKay, Navdeep Tangri

Co-Investigator (s): Robert Balshaw, Leah Cahill, David Collister, Bohdan Luhovyy, Rebecca Mollard, Jennifer Protudjer, Karthik Tennankore

CIHR introduces new Policy Guide with requirements for the registration and disclosure of results from clinical trials

CIHR introduces new Policy Guide with requirements for the registration and disclosure of results from clinical trials

As a signatory of the World Health Organization’s Joint Statement on Public Disclosure of Results from Clinical Trials, CIHR is committed to advancing open science, research excellence, and greater transparency in clinical trials. To that end, CIHR has introduced a Policy Guide with new requirements for the registration and public disclosure of the results of clinical trials.

Nominated Principal Investigators receiving CIHR grant funds for clinical trial research on or after January 1, 2022 must comply with the following practices to remain eligible for new CIHR funding:

  • Clinical trials must be registered in a publicly available, free-to-access, searchable clinical trial registry complying with the WHO’s international agreed standards before the researcher meets with the first study participant.
  • New Public disclosure of results must be done within a mandated time frame:
    • Publications describing clinical trial results must be open access from the date of publication.
    • Summary results must be publicly available within 12 months from the last visit of the last participant (for collection of data on the primary outcome).
  • New All study publications must include the registration number/Trial ID (to be specified in the article summary/abstract).

We invite you to read the Policy Guide and consult the Frequently Asked Questions to learn more.

CNTN Fall Virtual Research Symposium

Open call for submissions! The Canadian Nephrology Trials Network is planning our next virtual research symposium. Our network includes nephrologists, researchers and patient partners. This event is free and open to all. A great opportunity to present your work!

 

Please contact Alicia Murdoch amurdoch@cansolveckd.ca

 

Watch our Spring Virtual Research Symposium below

Peritoneal Dialysis Clinician Survey

In collaboration with the University of South Australia, Drs. Bohm, MacRae, Thompson and Zimmerman and patient partner Nancy Verdin are conducting an international survey exploring exercise and physical activity practices and perceptions among peritoneal dialysis (PD) clinicians. The results will directly inform the development of exercise guidelines for people receiving PD.

The survey has been approved by the University of South Australia research ethics board, as it’s being conducted in collaboration with the Global Renal Exercise Network.

The survey has 13 questions and takes approximately 8 minutes to complete. Survey link HERE

Can-SOLVE CKD Network Annual Meeting

A poster showcasing CNTN was available for view and to download at the recent Can-SOLVE CKD Network Annual Meeting September 9 and 10. The poster highlighted a timeline from inception to now, as well as highlighting our network goals, vision and what we offer. PDF version available here: CNTN Infographic PDF

Recording of the Annual Meeting available

  • Day One September 9 HERE
  • Day Two September 10 HERE

Congratulations to CIHR Spring 2021 Project Grant recipients

Congratulations to CNTN members Patient Partner Mary Beaucage, Dr. Amber Molnar, Dr. Sam Silver and Dr. Michael Zappitelli who were part of a team that was awarded a CIHR Spring 2021 Project Grant

Project Title: Filling Knowledge Gaps for the Success of Ontario Renal Plan 3

Principal investigator(s):Weir, Matthew A; Beaucage, Mary; Blake, Peter G; Chanchlani, Rahul; Clark, Edward G; Clemens, Kristin K; Dixon, Stephanie N; Harel, Ziv; Jain, Arsh K; Molnar, Amber; Silver, Samuel; Sood, Manish M; Zappitelli, Michael

CNTN Journal Publication NOW AVAILABLE

Read how Can-SOLVE CKD Network brought together their patient partners and CNTN members to envision a bright future for CNTN in the Canadian Journal of Kidney Health and Disease

Re-Envisioning the Canadian Nephrology Trials Network: A Can-SOLVE-CKD Stakeholder Meeting of Patient Partners and Researchers

Alicia Murdoch, Karthik K. Tennankore, Clara Bohm, Catherine M. Clase, Adeera Levin, Hans Vorster and Rita S. Suri

First Published July 14, 2021

International Consensus Meeting

In October 2020, Kidney International published the International Consensus Definitions of Clinical Trial Outcomes for Kidney Failure: 2020 developed from the 1st International Consensus Meeting on Defining Kidney Failure in Clinical Trials hosted by the ISN in Vancouver, Canada.

The event included Can-SOLVE CKD and CNTN patient partners.

The paper has been summarized into a slide deck and user guide for developing clinical trial protocols. Click on the link to download the PDF and Powerpoint slides.

For more information

How Canada can better embed randomized trials into clinical care

In the most recent issue of the Canadian Medical Association Journal, Drs. Srinivas MurthyRobert A. Fowler and Andreas Laupacis wrote an editorial about how the speed with which the UK executed the nation-wide priority-driven RECOVERY trial is not currently possible in Canada. 

From the editorial: “Those who manage and fund Canada’s health care systems need to view high-priority trials as an integral part of clinical care and to provide adequate and stable infrastructure funding, thus avoiding the current time-consuming and expensive process of developing separate data-sharing agreements and contracts with many hospitals and organizations. ”

You view the editorial online or download a PDF copy.

The Do’s and Don’ts of Patient Engagement

Patient engagement is a relatively new way of conducting research in Canada and many researchers are probably still wondering how to do it well. Dr. Simon Hatcher and his team at the Ottawa Hospital developed a graphic novel style tip sheet, “Top 10 Recommendations for Researchers Working with Lived Experience Partners“.

The comic was created by people with lived experience of suicide at the REFLECT research forum which brought together patients and caregivers as well as suicide prevention researchers, trainees and policy-makers.

The top 10 recommendations are:

  1. Use common and clear language
  2. Allow for customization to patient partner’s needs. Be flexible.
  3. Be authentic in the approach to patient-oriented research. Avoid tokenism.
  4. Define roles. Invite and acknowledge everyone’s contributions.
  5. Balance power dynamics.
  6. Invite patient partners to do more than what they are recruited for.
  7. Compensate fairly and as a matter of course. Reimburse expenses.
  8. Build relationships through honesty and trust.
  9. Ensure governance through integrity and accountability.
  10. Establish and encourage continuous communication and feedback.